Ten Misconceptions about People with Hearing Loss
By Janice Schacter
Editor: Here's Janice Schacter with some thoughts on misconceptions
about people with hearing loss. Janice is a retired attorney whose 14-year
old daughter is hard of hearing, and she is the pro-bono Chair of the
Hearing Access Program. This article is reprinted with the author's kind
permission.
~~~~~~~~~~~~~~~~~
March 2009
This article was written originally at the request of a corporation
that wanted to use it as a training tool for its staff. An informal survey
of people with hearing loss quickly revealed that there were many
misconceptions that were particularly upsetting and frustrating. This
issue became the topic of conversation at meetings across the country.
While this list says "Ten Misconceptions," there are many more. This is
just a starting point for a conversation.
1. Everyone with a hearing loss uses sign language and reads lips.
Hearing loss is a spectrum, and people with hearing loss don't all
communicate the same way. How a person communicates depends on a variety
of factors, such as the person's degree of hearing loss, whether a hearing
aid or cochlear implant is used, the age the person lost his/her hearing,
the level of auditory training received, and the nature of the listening
situation. The majority of people with hearing loss do not use sign
language, but it is still important to those whose communication depends
on it.
American Sign Language (ASL) is a visual language with its own syntax
and grammar that is quite different from spoken/written English language.
For example, instead of saying, "There goes the blue car," ASL would sign,
"Car blue go." Not all sign language is the same. It varies by country
just as the spoken language varies. A person with some knowledge of sign
language is not a substitute for a qualified interpreter who is trained to
transmit what is said clearly and accurately. All interpreters should be
certified.
Some people with hearing loss read lips and others do not. Lip reading
(also called "speech reading") is most helpful as a supplement to residual
hearing, since many speech sounds are not visible on the lips. It does
help to face the person with hearing loss. Many people can pick up visual
clues even if they are not proficient at lip reading.
2. Increasing the sound volume will enable a person with hearing loss
to understand what is said.
Increasing the volume is only part of the solution; clarity is also
important. There is a point where increasing the volume begins to distort
the quality of the sound. To obtain sufficient clarity, people with
residual hearing may require sound to be transmitted from the microphone
directly to their ear via an assistive listening system. Sitting close to
the speaker can assist the listener (and facilitates lip reading) but is
not a substitute for an assistive listening system. Yelling and
over-articulating does not help, because they distort the natural rhythm
of speech and make lip reading more difficult. A person who can hear
normally cannot determine whether the sound is fine for a person with
hearing loss.
3. Hearing aids and cochlear implants restore hearing to normal.
A person does not obtain "normal" hearing by wearing a hearing aid or
cochlear implant. It is not the same as wearing glasses. Hearing aids
increase the volume but do not significantly improve clarity or bring the
sound closer to the person. They can slightly enhance clarity by raising
the volume in certain frequencies. Communication with cochlear implants
varies from almost normal hearing to only gaining environmental sounds and
depends on such factors as the individual's hearing history, length and
onset of deafness, and age of implantation.
People with hearing loss may be able to understand and respond
correctly many times by listening intently, but they can miss important
information. It is also tiring to listen intently for a prolonged period.
4. People with hearing loss are dumb, stupid, mute, have intellectual
limitations, and are unsuccessful.
People with hearing loss have the same range of intelligence as the
general population without hearing loss. People with untreated, or
inadequately treated, hearing loss may respond inappropriately since they
may have not heard what was said. There are sometimes delays when the
telephone relay system is being used due to the time needed for
transcription. Those who are not familiar with relay service may assume
that the additional time is because the person with the hearing loss is
not intelligent.
Some people with hearing loss can speak and others cannot. A person who
speaks well doesn't necessarily hear well. It can be frustrating or
upsetting to people with hearing loss when a person remarks on how well
they speak. Speaking to the companion of the person with hearing loss,
instead of directly to the person, reinforces this attitudinal
discrimination.
People with hearing loss do have difficulty obtaining employment
because of a misconception that they cannot do more than simple tasks.
This attitude dates back to when remedies for hearing loss were few or
nonexistent. A person with a hearing loss is fully employable but may need
certain accommodations for effective communication, as required by the
Americans with Disabilities Act. It is always best to ask the person what
type of accommodation is needed.
5. People with hearing loss are older adults.
Of the 36 million people with hearing loss, only 30% of the people that
have some form of hearing loss are 65 or older.
6. People with hearing loss only spend time with other people with
hearing loss.
Hearing loss can affect anyone and does not discriminate. People with
hearing loss spend time with family or friends who may or may not have a
hearing loss. They do not want to be relegated to special seats and want
to sit with as many friends and family members as they wish just like
everyone else.
7. Having a hearing loss is shameful.
This assumption explains why many people with hearing loss will not
purchase or use hearing aids. According to the National Institute on
Deafness and Other Communication Disorders, "only one out of five people
who could benefit from a hearing aid actually wears one."
8. When people with hearing loss miss something, it's OK to tell them
"It's not important" or "I'll tell you later."
It is frustrating to people with a hearing loss not to have something
repeated when they miss part of the conversation. Saying "It wasn't
important" compounds the frustration because now not only did they miss
part of the conversation but the conversation is also being edited. The
person with a hearing loss wants to decide for himself or herself what is
important.
9. People with hearing loss are rude and pushy.
People with hearing loss may interrupt a conversation because they
didn't hear the speaker and not because they are rude. People with hearing
loss may position themselves toward the front of a group or in a room so
that they are closer to the speaker, making it easier for them to hear and
lip read. This is sometimes perceived as being pushy.
10. People with a hearing loss are defined by their hearing loss.
Hearing loss is a characteristic, like the color of one's eyes. It does
not define the person. The "person" should be listed first, e.g. "person
who is hard of hearing," "person who is deaf," or "person with hearing
loss." See http://tinyurl.com/b8st24
The Hearing Access Program, established in 2002, is the only
organization dedicated to helping the world's corporations, cultural and
entertainment institutions, government agencies, and mass transit
organizations improve their accessibility to people with hearing loss.
This document was developed in consultation with people and organizations
representing people with hearing loss. Prepared and copyright protected by
The Hearing Access Program, 2/28/09 Janice Schacter 212-988-8099 Jschacter@nyc.rr.com