Can't Tell
the Players without a Program - One of a Series of Articles on the
Awakening Oral Hearing Loss Community
By Randy Collins
March 2005
Editor: So who exactly are we talking about here? What defines
membership in the "Awakening Oral Hearing Loss Community"? My
definition is "anyone with hearing loss who prefers to communicate
using spoken language." Here with some additional thoughts is Randy
Collins, who regular readers will know pretty well by now ;-)
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"Deaf and hard of hearing". There's that Deaf lite
perspective again, and confusion concerning who we are continues. We
know who we are, but we are not getting the message out to the Deaf and
hearing worlds. "Deaf and hard of hearing" is NOT a single
disability - it's two, and if we want to be more specific there are
actually three distinct types of Deaf and hard of hearing. What so often
happens is that Deaf and hearing people morph linguistic and
audiological differences into one disability - Deaf and hard of hearing.
'Taint so.
Linguistically there are culturally deaf people or as they prefer -
and I agree - Deaf, with a capital D. Deaf people, usually prelingually
deafened, if not born deaf, use sign language, ASL, as their preferred
mode of communication. It is their first language, their native
language. Language is part of the critical mix in the cement that holds
a culture together; all cultures. As such Deaf people have a rich,
vibrant and wonderful culture.
Audiologically the same are people who were born deaf or deafened
early, but educated in an oral method, or people who are postlingually
deafened, as in later in life. The key cultural factor however is NOT
audiological - and that is where the confusion starts. The key factor
here is linguistic; in the US it is English. The native language of deaf
(little d) people is English and their culture is mainstream, English
based, America.
Can a deaf person (an orally educated deaf child or a deafened adult)
become a member of Deaf culture? Yes, it happens but it is not normally
the case. Such a person must become fully fluent in ASL, but that is not
enough. That person must also socialize primarily with the Deaf
community and learn to accept all the nuances of Deaf culture. I. King
Jordan would be a prime example of someone who was deaf and is now Deaf.
Then there are the rest of us. Hard of hearing people, born that way
or those who became so later in life (including Late Deafened), prefer
oral communication, English in the US. Most of us began to lose our
hearing later in life. Mainstreamed, English based, America is our
culture - or was. Here's the HUGE distinction most people never address
- As language is a key component of culture and by virtue of the fact
that we have lost or our losing our hearing, we are losing our ability
to participate fully in our culture. We have a culture but we are in a
sense losing it and there is no culture to replace it! We don't have a
critical mass of peers readily available to access for support and
guidance.
Hard of hearing people are out there on the high wire of life without
a net. This is in sharp contrast to Deaf people, who have a culture that
is complete with thriving and rewarding social outlets.
One group consists of Deaf people. I include culturally Hard of
Hearing in this group - those who are audiologically hard of hearing,
grew up in a Deaf environment, and likely attended Deaf schools. The
other group is hard of hearing people. In this group I include oral deaf
and late deafened adults. [Ed: this is the group that I'm calling the
Oral Hearing Loss (OHL) community.]
My apologies for confusing anyone. I've tried to skip over the topic
and highlight the key facts so as not to bore everyone to tears with a
longer post. I've presented this topic in greater detail about 4 or 5
times when I've had the opportunity. The response has been fascinating,
to me at least. Hard of hearing people usually respond with, "Yes,
that's it. Yes!" Deaf people agree, or disagree, or adamantly
disagree, and hearing people usually fall asleep. LOL!