Are Group Aural Rehabilitation (AR) Programs Effective?
- Part Two
By Mark Ross
March 2010
Editor: You probably know that one of my hot buttons is the tendency of
too many audiologists and hearing aid dispensers to treat their clients
like a giant ear that needs a hearing aid shoved in it, rather than as a
person who needs a complete range of services to help them deal with the
effects of hearing loss. I've long believed that group aural
rehabilitation programs should be a standard offering of everyone who
dispenses hearing aids. But are they effective? Here's Mark Ross to weigh
in on the subject.
This article originally appeared in Hearing Loss Magazine, and is
reprinted with the author's kind permission.
This is part two of two parts.
~~~~~~~~~~~~~~~~~
Here's Part One!
Two kinds of evidence have been offered to support the notion and
effectiveness of group AR programs. Support for the first type of evidence
is inherent in the content of the typical group AR program; sometimes this
is labeled "face validity" but I prefer to call it "common sense" (which
may not be all that "common"). Consider this brief outline of a fairly
typical group four-session AR program:
* At the first meeting, asking each hearing-impaired person and SO to
note "the worst thing about having a hearing loss." At this point, these
are just noted; possible solutions come later. People are surprised how
often their problems are shared by others.
* Types of hearing loss; understanding the audiogram (basically this
should be a review of the information covered during the hearing aid
selection process).
* Using hearing aids effectively; introduction and explanation of
special features.
* Overview of the various hearing assistive technologies other than
hearing aids themselves (e.g., for telephones, TV listening, smoke alarms,
special purpose devices).
* Introduction to speech reading and auditory relearning. Home training
programs.
* And everything that comes up that relates to a hearing problem. Many
of the issues that arise may require an individual appointment.
Most people who take this kind of program report that it is helpful. In
one survey conducted at the Mayo Clinic Jacksonville, 307 patients were
asked to rate the helpfulness of the program (from 1, "not helpful," to 6
"very helpful"); the average rating was 5.8 with 97% of the patients
giving a score of 5 or 6. Another survey, conducted at a multi-center
dispensing practice, found that hearing aid return rates were reduced from
9% to 3% for the people who had completed the program, compared to those
who had not. While these surveys may not meet a strict definition of
research, they clearly indicate that these AR programs have been helpful
to lots of hearing aid users and their SOs. Certainly, this has been my
experience when I conducted such programs myself.
What does count as research are the studies reviewed by Dr. David
Hawkins in the Journal of the Academy of Audiology several years ago.
After an intensive search of the literature, he found just twelve that met
the criteria of a properly conducted research study. These were studies
that employed both appropriate research conditions and recognized outcome
measures. The typical program was conducted over a four week period and
usually compared the performance of subjects who received a hearing aid
but no AR to a group that received a hearing aid plus a short-term group
AR program. It should be noted that these were counseling based studies,
unlike those that focus directly on communication skills (such as
speechreading and auditory training).
After carefully examining all of these studies, Hawkins concludes that
there is "reasonably" good evidence that these programs will provide for,
at the least, a short-term reduction in the self-perception of a hearing
handicap as well as better use of communication strategies and hearing
aids. As such, from a research perspective these programs are clearly
worth doing. Even so, there is still some question whether these benefits
persist over time, as well as whether or not the right kinds of "outcome"
measures were employed. In my judgment people who take such a program can
benefit from an occasional "booster" shot, whether in the form of another
"review" short-term AR program, or perhaps by just being an active member
of a Hearing Loss Association of America chapter. In short, in the same
way we get booster shots to protect us against the flu each year, an
occasional AR boost can also be beneficial.
The most recent research study (2009) on the effects of a short-term AR
program, conducted by Drs. Jill Preminger and Suzanne Meeks, has an
interesting twist. They provided an identical program to two groups, an
experimental one in which their significant others were also provided with
a separate AR program and a control group whose SOs received no such
program (later rectified). Previous research had shown that the inclusion
of SOs in the same classes as the persons with a hearing loss was
beneficial to both parties. The researchers took this concept one step
further, providing group classes designed specifically for SOs, in
recognition of the fact that they also have a hearing "problem," just by
living with someone with a hearing loss.
The basic question that the investigators asked was: Would the person
with a hearing loss and the SO both judge the impact of the hearing loss
on their quality of life (stress, affect, mood, marital communication,
etc.) similarly after the SOs separate program compared to their previous
pre-treatment ratings. It is surely a recipe for a tension filled marriage
if the two parties see the impact of the hearing loss very differently.
Pre-treatment, both groups of hearing-impaired subjects and their SOs were
administered identical quality of life rating scales. Only about 50% of
the couples, in both groups, rated the impact of the hearing loss
similarly (termed "congruence"). For half the couples, then, there were
significant differences in their perception of how the hearing loss
affected their lives. Usually, it was the person with a hearing loss who
felt the hearing loss had a greater effect than the SO. Obviously, it is
not exactly a good omen for marital comity when couples have such
disparate views of a condition that affects both their lives. After the
study, however, the congruence score increased to 72% for the partners in
the experimental group. Not perfect by any means, but clearly superior to
the lack of congruence prior to the group program for SOs. No congruence
change was noted for the control group, which remained at 50%.
As we consider, then, both the research literature and common sense, it
is clear that there is value in a post-hearing aid fitting short-term AR
program. Not as an add-on, but as an integral component of the hearing aid
selection process. It should be routinely included in the hearing aid
fitting process in much the same way that physical therapy is included
following many surgical procedures. I can hear the many objections now
(and have heard them repeatedly over the years), and some do have merit.
But the basic question to ask is whether these group programs can be
helpful, and the answer in my view, is an unambiguous yes. Given this
observation, then, the challenge is how best to respond to these
objections rather than offering excuses why AR follow-up can't be done. As
it happens, it has and is being done is a few exemplary programs - but
these are exceptions when they should be the rule.