organizations of, by, and for people with hearing loss
back to "New to
Hearing Loss"
Coping with hearing loss is an ongoing challenge. Fortunately, many
organizations have been established by and for people with hearing loss.
These organizations tend to vary somewhat in mission and focus, but all
have the primary purpose of assisting hard of hearing, late deafened,
and oral deaf persons. For a thorough discussion of the kinds of issues
these organizations deal with, see our issues that affect hard of hearing, late deafened, and oral deaf people
discussion.
The following
links provide general information about these organizations and
generally contain a link to their website.
Alexander
Graham Bell Association works to empower deaf and hard of hearing
people.
The American Association of the Deaf-Blind is
an organization of, by, and for people with both hearing and vision
loss.
The American Tinnitus Association focuses on
the relief, prevention, and eventual cure of tinnitus.
The Association of
Adult Musicians with Hearing Loss is for individuals who have
significant hearing loss but enjoy making music. The organization
strives to show the world that loss of hearing does not have to mean the
loss of music.
Association of Late Deafened Adults (ALDA)
focuses on education and support for late-deafened persons.\
The Association of
Medical Professionals with Hearing Loss (AMPHL) supports medical
professionals with hearing loss.
The Deaf Bilingual Coalition was formed in
2007 to promote the teaching of ASL to kids with hearing loss.
DeafGA is a new
online group for attorneys and law students with hearing loss.
Hear the World is a global initiative created
by Phonak to raise awareness of the importance of hearing.
Hearing Loss Association of America (HLAA)
focuses on providing information and support for people with hearing
loss..
The International Federation of Hard of Hearing People
(IFHOH) is an international organization working for the rights of
hard of hearing and late-deafened people.
The National Association of the Deaf
focuses on safeguarding the accessibility and civil rights of 28 million
deaf and hard of hearing Americans in education, employment, health
care, and telecommunications.
The Ohio Coalition for Hearing Health Awareness is
a state organization with a new and refreshing approach to assisting
people with hearing loss. You'll want to read about this!
SayWhatClub is an online organization
that provides support and information for persons who are hard of
hearing or late-deafened.
Telecommunications for the Deaf, Inc. (TDI)
is a national advocacy organization focusing
its energies and resources to address equal access issues in telecommunications
and media for people who are deaf, hard-of-hearing, late-deafened,
or deaf-blind.
The Western Symposium on Deafness is a
biennial conference sponsored by the Western Regional Outreach Center
and Consortia (WROCC) at California State University, Northridge (CSUN).
The World Federation of the Deaf is an
international organization that works to improve the lives of people
with hearing loss throughout the world.
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May 2013 - NIDCD Observes Better Hearing and
Speech Month
February 2013 - International Hearing Loop
Conference 2013
December 2012 - Donna L. Sorkin Appointed Executive
Director of ACI Alliance
November 2012 - Major
Changes at BHI; Sergei Kochkin to Leave
December 2011 - Association of Medical
Professionals with Hearing Loss Wants Your Help to Establish State
Chapters
November 2011 - Seeking Public
Input on the 2012-2016 Draft NIDCD Strategic Plan
September 2011 - Deafness Research Foundation
Becomes Hearing Health Foundation
August 2011 - House Research Institute
Celebrates 65th Anniversary
January 2010 - National Hearing Health Organizations: Financial
Overview
November 2009 - CHC Launches "Ask the Experts"
August 2009 - Let Them Hear Foundation
Unveils Individuals with Disabilities Education Act Website
January 2009 - Hearing Loss Organizations
Provide Recommendations to Obama Administration
back to "New to
Hearing Loss"
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November 2012
Citing "structural and programmatic changes for
the Better Hearing Institute (BHI)," the Hearing Industries Association (HIA),
which funds BHI, announced that Sergei Kochkin, BHI's executive director
since 2004, "will no longer be associated with the institute" effective
November 1. In a press statement issued October 22, HIA said, "While Dr.
Kochkin will no longer be on staff, HIA anticipates a continued
relationship with him and is deeply appreciative of his many years of
service as an HIA member, a BHI director, and, most recently, its
executive director." It continued, "His work has contributed to a
comprehensive understanding of people with hearing loss and their approach
to amplification that has enhanced the products and services that the
hearing aid industry delivers to those individuals, and the industry
deeply appreciates and loudly applauds his contributions."
Full Story
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November 2011
The National Institute on Deafness and Other
Communication Disorders (NIDCD), one of the National Institutes of Health,
has released for public comment a draft of our 2012-2016 NIDCD Strategic
Plan. Comments may be submitted between October 24 and November 23, 2011.
The NIDCD supports and conducts research and
research training in the areas of hearing and balance; smell and taste;
and voice, speech, and language. The Strategic Plan serves as a guide to
the NIDCD in prioritizing its research investment, illustrates the current
state of the science, and highlights recent advances in the communication
sciences. The draft plan presents a series of goals and objectives that
represent the most promising research needs within the NIDCD's mission
areas.
The NIDCD anticipates that the finalized plan will
be published on the NIDCD website in January 2012.
Read the draft document and submit comments
here:www.nidcd.nih.gov/about/plans/strategic/Pages/publiccomments.aspx
