Volume 20 Issue 13

HOH-LD-News
Vol. 20, Issue 13
September 25, 2004

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Table of Contents
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- Article 1: Growing a Healthy "Hybrid" Relationship - Part 4
- Article 2: SHHH Exhibit Floor - Part 11
- Article 3: Gene Replacement Therapy Can Generate New Hair Cells
- Article 4: Wanted: Your Comments for the Joint Captioning Quality Petition
- Classifieds: One Service, one Call for Workshops, one Event and two Employment Opportunities
- Contact Information and Disclaimers

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Contact information and disclaimers are at the end of this newsletter.
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- Article 1: Growing a Healthy "Hybrid" Relationship - Part 4
By Laine Waggoner, M.A., M.S.
~~~~~~~~~~~~~~~~~~~

Editor: Char and I have known Laine and Rex Waggoner for several years now, and have even presented with them at a national conference! We are all very interested in promoting communication between people with hearing loss and the important folks in their lives. Here's Part four of a recent article that reveals some of their wisdom.

As appeared in Spring '04 issue of Hearing Health. Reprinted with permission. For more information on HH and to subscribe to online and print editions, call 202.887.5850 or visit www.hearinghealthmag.com.

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He (is hearing) Says:

First get the listener's attention. Face the listener at a distance of six feet or less and use lots of eye contact. Make sure the light is on your face, not coming from behind you.

Take care with your speech. Don't shout but speak clearly at a moderate pace. Avoid vocal monotony. Use facial expressions, hand gestures or visual aids to convey meaning. Never speak with something in or covering your mouth.

State the topic at the outset of the conversation and whenever the subject changes.

Ask (tactfully) for feedback to be sure you are understood. Ask what else you can do to communicate more effectively.

NEVER say "Never mind, it's not important." A reluctance to make the effort to clarify a communication can be interpreted as "I don't care enough about you," which can negatively affect the HOH person's feelings of self-worth.

HOH partners' ability to understand may fluctuate, depending upon stress, fatigue or illness and may affect their emotions, moods and level of concentration. Watch for the emotional content of what is said and unsaid. Encourage talk about feelings and challenges.

Be mindful of how family and friends can unintentionally be insensitive or unhelpful.

Maintain a sense of humor at all times.

She (is HOH) Says:

Whoever initiates the conversation goes to the listener. Seek a quiet space with no background noise and few visual distractions. Face people when they speak to you and position yourself so you can easily see their face and lips.

Tell others not to shout but to speak clearly at a moderate pace with simple sentences. Learn speechreading to take advantage of visual cues. Ask for written cues if needed.

In conversations, be attentive, try not to interrupt and attempt to follow the flow to gain meaning.

Be an active listener. Provide and get feedback about what you understood or missed.

Do not bluff. Admit when you do not understand. Ask the speaker to repeat or rephrase if you do not understand the first time.

Tell others if you are unwell, fatigued or too distracted to concentrate. Share all the ways that your hearing loss affects you.

Enlist your spouse and family members as communication partners. Remember that your loved ones will find that changing communication behaviors of a lifetime is a very daunting task.

Ditto! And remember that people are human and they forget.

Laine Waggoner, M.A., M.S., director of HEAR - Hearing-loss Education And Resources in Palm Springs, California, lives creatively with a profound hearing loss and her hearing partner, Rex Waggoner, M.A. They provide coaching on communication, coping and relationship skills for people with hearing loss and their loved ones. Email them at LaineWaggoner@dc.rr.com or RexWaggoner@dc.rr.com.

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- Article 2: SHHH Exhibit Floor - Part 11
By Cheryl Heppner
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Editor: One of the best things about hearing loss conventions is the exhibit floor, where vendors of hearing loss products display their wares. Cheryl Heppner is a master at exploring the booths to discover all the new stuff. Here's the final installment of her report on this year's exhibits at the SHHH convention.

This report discusses:
- Boys Town
- Nebraska Commission for the Deaf and Hard of Hearing

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Boys Town

Boys Town, which is apparently making the transition to Boys and Girls Town, has published a new 2004 catalog of resources for parents, educators, and youth-serving professionals. The catalog includes some materials relating to deafness and hearing loss. The catalog is free: 1-800-282-6657.

The Boys Town National Research Hospital, with support from National Institute on Deafness and Other Communication Disorders (NIDCD) has a new website to search for information about your baby's hearing or communication. It covers areas such as parent-to-parent information, language and learning, and hearing and amplification: www.babyhearing.org

The hospital's National Center for the Study and Treatment of Usher Syndrome, the leading cause of combined hearing and vision loss in the U.S., has published a report about its programs and goals.

There's a separate publication on the Lied Learning and Technology Center which seeks to improve the lives of children with hearing loss, vision impairment and other communication disorders through early identification, education, state-of-the-art rehabilitation, rigorous research, and family support.

The Learning and Technology Center for Childhood Deafness and Vision Disorders has a number of services and research:
- Model early childhood education facility
- Cochlear implant clinic and research center
- Educational media production facility
- Distance learning and family outreach center
- Hearing and vision rehabilitation laboratories
- Bioinformatics and computer center
- Communication technology development center
- Communication technology workforce development program
A recent newsletter reports on a Boys Town study funded by the National Institutes of Health to pinpoint more accurate fitting of hearing aids for infants and children.

To access Boys Town National Research Hospital information about the care and treatment of children with hearing loss, research, scientists, medical experts:
www.boystownhospital.org

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Nebraska Commission for the Deaf and Hard of Hearing

Did you ever wonder how services differ from state to state? Nebraska's version of our Virginia Department for the Deaf and Hard of Hearing was an agency established by the Nebraska state legislature in 1979. Its programs include:
- Access for the 21st Century, with a goal to provide statewide access for deaf and hard of hearing people to public facilities and service industries.
- Assistive devices loan program -- TTYs, telecaption decoders and PockeTalkers.
- Ongoing, confidential and voluntary census of all Nebraskans with hearing loss.
- Conversational sign language classes to state agencies.
- Information and referral of a variety of topics related to hearing loss.
- Hearing aid bank with Lions Foundation and University of Nebraska Medical Center; another with Sertoma Clubs and University of Nebraska-Lincoln Speech & Hearing Clinic.
- Media center with videos, books and books on tape.
- Mental health, alcohol, and drug abuse services.
- Equipment distribution program, which gives vouchers of up to $1,000 to deaf, hard of hearing, deaf-blind and speech disabled person to purchase equipment, with no income guidelines to meet.
- Project HEAR to inform consumers about hearing assistive technology.
- State sign language interpreter referral service and list of qualified sign language interpreters.

I talked with Jennifer Taylor, Interpreter/Program Coordinator.
There are three offices for the agency - Lincoln, Omaha and North Platte.
For info: www.nol.org/home/NCDHH

***************
(c)2004 by Northern Virginia Resource Center for Deaf and Hard of Hearing Persons (NVRC), www.nvrc.org. When sharing this information, please ensure credit is given to NVRC.

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- Article 3: Gene Replacement Therapy Can Generate New Hair Cells
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Editor: Here's another report of an advance in the field of hair cell regeneration, the ability to induce adult guinea pigs to generate hair cells by using a virus to insert a gene into inner ear cells.

A couple of years ago one of the leading hair cell regeneration researchers predicted clinical trials within 5 or 10 years. I haven't heard an update on that prediction, but recent breakthroughs seem to indicate that we're still on that timeline.

Here's the story from NIDCD (The National Institute on Deafness and Other Communication Disorders)

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Background: The sensory hair cells of the inner ear play an important role in detecting sound, and people who lose hair cells due to diseases, infections, or accidents often lose some or all of their ability to hear. Scientists have determined that many forms of inherited deafness are also due to problems with hair cells. The hair cells of the inner ear act like miniature amplifiers. Sound waves that enter the inner ear are converted into a series of chemical and electrical signals within the cells. These signals are ultimately transmitted to the brain via the auditory nerve and interpreted as sound.

Advance: In the past, only birds or reptiles were thought to be capable of generating new hair cells. Now, NIDCD-supported scientists have discovered a way to use gene therapy to generate new hair cells in the ears of adult mammals. Scientists used a virus to transfer a gene called Math1 into the ears of guinea pigs. Math1 is expressed in developing hair cells, and its expression is thought to cause the cells to become hair cells, rather than becoming another cell type within the ear. The virus infects cells of the ear and causes them to produce the Math1 protein. Early experiments suggest that when the virus infects cells that do not normally express Math1, some of these cells become hair cells. In addition, the new hair cells also attract fibers of the auditory nerve, suggesting that the new cells may also be able to establish a link to the part of the brain that interprets sound - the auditory cortex.

Implications: If this work can be duplicated in human beings, it may one day enable scientists to use gene therapy to restore hearing to those who have lost it, or to enable deaf individuals to hear.

Kawamoto K, Ishimoto S, Minoda R, Brough DE, Raphael Y. Math1 Gene Transfer Generates New Cochlear Hair Cells in Mature Guinea Pigs in vivo . J Neurosci 23:4395-4400, 2003.

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- Article 4: Wanted: Your Comments for the Joint Captioning Quality Petition
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Editor: I think most of you are aware that a coalition of hearing loss organizations has undertaken a project to improve the quality of television captioning. They have recently filed a petition with the FCC, and would very much like you to comment to the FCC about the petition. Instructions are included in the portions of the TDI press release provided below.

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Now it is Easier for You to File Your Comments for the Joint Captioning Quality Petition by TDI and Other Organizations

Contacts:
TDI - Claude Stout: tdiexdir@aol.com
AAPD - Andrew Imparato: aapd@aol.com
ALDA - Lois Maroney: PJMLNM@aol.com
DHHCAN - Cheryl Heppner: cheppner@nvrc.org
NAD - Nancy Bloch: bloch@nad.org
SHHH - Brenda Battat: Brenda@shhh.org

SILVER SPRING, MD: It is now easier for you and your friends to file comments and tell the FCC what you think about captioning quality. The landmark petition on captioning quality issues filed by TDI and other deaf and cross-disability organizations to the Federal Communications Commission (FCC) on July 23, 2004, has received another boost.

If you have already filed comments, TDI thanks you. If you have not yet filed comments, now it is much easier. TDI strongly encourages all captioning viewers to file comments in support of this petition (#RM-11065) with the FCC and ask them to improve captioning quality for all. Deadline for Comments is Friday October 1, 2004. Reply Comments are due Friday October 15, 2004.

As part of the organizations' ongoing efforts to promote more consumer involvement with the FCC and other government agencies, we encourage every television viewer who uses closed captioning to share their own personal experiences with the FCC. When citing problems with quality of a program, be sure to include the following information: program, date(s) and times, channel (Use names like HBO, USA Network, not numbers.), city and state.

TDI's Petition for Rulemaking is now on ECFS Express for the remainder of the comment period. This will make it easier for you to file comments. Go to http://gullfoss2.fcc.gov/ecfs/Upload/ and scroll down until you see one of the "buttons" that says:

* TELECOMMUNICATIONS FOR THE DEAF, INC. PETITION FOR RULEMAKING REGARDING CAPTIONING ISSUES - DOCKET RM-11065
File comments on whether the Commission should change or modify its current closed captioning rules.

Select that button and scroll down to click on "Continue".

Fill in all the blanks as follows:
1. Type in your name.
2. Type in your mailing address
3. Type in your city
4. Click and then select your state of residence.
5. Type in your Zip Code
6. Type in your e-mail address (Optional)
7. Type in your brief comment and tell the FCC what you think about the current captioning rules and how they can be improved if necessary.

Scroll down and click on "Send Comment".

Note: This would not be a "private" comment. What you say will become part of the public record. Other people will be able to read what you say.

**************************************************************************

If you want to read other people's comments and the Petition itself in the FCC's Electronic Documents Management System or EDOCS, go to http://gullfoss2.fcc.gov/prod/ecfs/comsrch_v2.cgi

- Type RM-11065 in Proceeding Box #1 in upper left corner.
- Hit Retrieve Document List. On the next page, you will see many boxes.
- Scroll down to the last box at the bottom of the page. All the boxes are comments from other people.
- Near the bottom of the last box, hit the first "VIEW" hyperlinks on the left. You will then see a PDF document from Swidler, Berlin, Shereff, Friedman, LLP. Each link shows a PDF file that is part of our comments.
- Click on the other "VIEW" to view the other parts of the comments filed on behalf of TDI by our pro-bono law firm. . Each link is roughly 30 pages as the entire document is 99 pages.

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- Classifieds
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One Service, one Call for Workshops, one Event and two Employment Opportunities appear in this issue. (Ads appear after this brief table of contents.)

Service 1
Sprint Federal Relay CapTel Program

Call for Workshops 1
2005 Deaf and Hard of Hearing in Government Conference
Washington, DC
May 9 - 11, 2005

Event 1
Jewish Deaf Congress Conference 2005
Tampa, Florida
July 3 to 10, 2005

Employment Opportunity 1
Various Opportunities with GLAD
Various locations in Southern California

Employment Opportunity 2
Rehabilitation Specialist
Arundel Lodge, Inc.
Annapolis, MD

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Service 1
Sprint Federal Relay CapTel Program
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Media Contact:
Stephanie Taliaferro, 913-794-3658
Stephanie.c.taliaferro@mail.sprint.com FOR IMMEDIATE RELEASE

Sprint Provides Free CapTelSM Phones for Hard of Hearing Federal Government Employees and Veterans

OVERLAND PARK, Kan. - July 7, 2004 - Sprint (NYSE: FON), the leading provider of telecommunications relay services (TRS), is working with the General Service Administration (GSA) to provide up to fifty (50) free CapTelSM phones every month for federal government employees (civilian and military), Federal retirees and veterans. CapTel offered by the Federal Relay, fully FCC compliant, is an assistive technology aimed at easing communications for the more than 24 million Americans who are hard of hearing, have experienced hearing loss later in life or deaf individuals with good vocalization skills.

CapTel relay service is a leading-edge technology developed by Ultratec, Inc. of Madison, Wis., which allows people to receive both voice and text captioning, nearly simultaneously. A special CapTelTM-equipped phone is required in order to place a call through the CapTel Relay Service. The CapTel phone works like any traditional phone with callers talking and listening to each other, but with one very significant difference - captions are provided live for every call. The captions are displayed on the CapTel phone's built-in screen so the user can read the words while listening to the voice of the other party. The conversation can flow naturally, allowing for normal interruptions and expressed emotions. CapTel through Federal Relay is available 24 hours a day, seven days a week (Spanish - 8am to Midnight Eastern daily)

"Sprint is pleased to provide yet another communications alternative for federal employees who are hard of hearing or deaf," said Mike Ligas, region vice president, Sprint Relay. "Using CapTel through Federal Relay can be a life changing experience for many by allowing them to communicate better with their family, friends and for business purposes."

For further information on Federal Relay or CapTel service or to obtain a free Federal CapTel phone, qualified Federal employees/retirees or veterans need to complete and submit an application form, visit http://www.captionedtelephone.com/availability/FRS.phtml. Additionally, you can contact Randy Murbach, Contract Manager, by e-mail at randy.g.murbach@mail.sprint.com.

How CapTel Works

As the user dials the phone number of the person they wish to call, the CapTel phone automatically routes their call through the CapTel call center and connects them to their called party. At the call center, a specially trained operator uses a customized voice-recognition computer and re-voices whatever is said by the called party. The voice-recognition software transcribes the operator's voice into captions that appear on the CapTel's bright display screen for the user to read. The user also hears the other party's voice on the phone to the best of their ability, just like any other amplified phone.

Sprint Relay Background

Sprint has nearly 14 years of experience in providing relay services to persons who are deaf, hard of hearing, deaf-blind or speech disabled to communicate with hearing persons on the phone. Relay service is available 24 hours a day, 365 days a year, with no restrictions on the number of calls placed or call length. Sprint is one of the leading employers of Deaf and Hard-of-Hearing people in the industry. The 'Sprint Relay' team is comprised of individuals who are daily users of the service, and have greatly influenced the development and quality of Sprint's products and services. For more information on Federal Relay, visit www.fts.gsa.gov/frs/ and Sprint Relay at www.sprintrelay.com.

Sprint Government Systems Division is based in Herndon, Va., and offers the full range of Sprint product and service offerings for federal and state government customers.

About Sprint

Sprint is a global integrated communications provider serving more than 26 million customers in over 100 countries. With approximately 65,000 employees worldwide and over $26 billion in annual revenues in 2003, Sprint is widely recognized for developing, engineering and deploying state-of-the-art network technologies, including the United States' first nationwide all-digital, fiber-optic network and an award-winning Tier 1 Internet backbone. Sprint provides local communications services in 39 states and the District of Columbia and operates the largest 100-percent digital, nationwide PCS wireless network in the United States. For more information, visit www.sprint.com.

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Call for Workshops 1
2005 Deaf and Hard of Hearing in Government Conference
Washington, DC
May 9 - 11, 2005
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2005 Deaf and Hard of Hearing in Government National Training Conference: Call for Papers (Workshops)

The theme of the NTC Conference, to be held in Washington DC, May 9-11, 2005, is "Think. Act. Lead". For further information in regards to the Conference, please go to http://www.dhhig.org/ntc/2005/index.htm.

We invite you to design and submit a proposal for a session that is consistent with the conference theme, and the vision statement below. It should include information that:
* is relevant, practical, and reflects emerging knowledge.
* gives opportunities for information exchange and problem solving.
* addresses new tools and techniques.
Conference Vision Statement - To position Deaf and Hard of Hearing employees from all levels of government as well as Hearing employees for the future through inspiring presentations and challenging discussions of emerging trends, vital issues, and visionary thinking.

Submit Your Proposal
Take advantage of this unique opportunity to share your knowledge, talents, and expertise with federal employees. Sharing your knowledge and successes allows you to positively impact the lives of professionals who in turn influence the lives of others. To submit, please go to http://www.dhhig.org/ntc/2005/docs/workshop_submission_information.doc.
Presentation Lengths:
* 1-hour interest sessions
* 1 to 2- hour workshops

Target Audience
NTC attendees include Deaf and Hard of Hearing employees from all levels of government, Human Resource Managers, Equal Employment Opportunity Specialists, Representatives from Agencies, Supervisors, and Hearing Colleagues. The audience ranges from new professionals to professionals in all fields (from IT professionals to Financial Analysts) with more than ten years of experience.

Program Tracks
Program tracks will include, but are not limited to: Strategic Management, Operational Management, Program Management, Quality of Life, and Deaf and Hard of Hearing in Government Leadership Showcase. For further information, please go to http://www.dhhig.org/ntc/2005/workshops.htm.

Submission Criteria
Proposals will be evaluated to the relevance to NTC's vision, audience, and conference theme. Our goal is to design a comprehensive, balanced program with sessions in all tracks. For questions, contact Lisa Wilson, the Workshop chairperson, at WilsonL@nhlbi.nih.gov.

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Event 1
Jewish Deaf Congress Conference 2005
Tampa, Florida
July 3 to 10, 2005
~~~~~~~~~~~~~~~~~~~

Something exciting is coming to Tampa, Florida in 2005!

It will be a conference of a different kind!

It will be Jewish Deaf Congress Conference 2005 at Grand Hyatt Tampa Bay Hotel (a 4 star property) from July 3 to 10, 2005.

For the first time in JDC history we will have a HANDS-ON conference on Jewish wines, Jewish jewelry, Jewish roots, Jewish cooking and much more.

Participants will be actively involved in activities. Jewish Deaf people and their non-Jewish friends are more than welcome to join & learn "how to do it" while having fun too.

The hotel rates are only $89 a night, no matter how many people in a room. So come and share room with your friends. (psssst, Grand Hyatt Tampa Bay averages $165 a night and its an incredible deal)

Additional information and details can be found at:
www.jdc2005.com
See the website to see what's happening!

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Employment Opportunity 1
Various Opportunities with GLAD
Various locations in Southern California
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GLAD is an Affirmative Action Employer with equal opportunity for men, women and people with disabilities.
For more information on the following positions, go to: www.gladinc.org
Status of all positions is: Regular, Full-time, Non-Exempt, Full Fringe Benefits unless otherwise noted.
All positions are open until filled. Revised 09/21/04

EXECUTIVE ASSISTANT
Location: Los Angeles
Program Name: GLAD
Salary Range: Negotiable based on experience
Brief Summary: Under the direction of the Chief Executive Officer, the Executive Assistant will perform high-level secretarial and administrative duties with a Human Resources component, which requires independent judgment, exercising tact and personal initiative. The Executive Assistant will compose/type routine correspondence, etc.; organize/maintain office files; answer/screen CEO's telephone messages, schedule/make appointments; arrange/coordinate CEO's travel schedules/reservations; coordinate/ arrange meetings, record/transcribe minutes of meetings; interpret as needed; maintain agency insurance; administration of all employee benefits; recruit, interview/hire all GLAD personnel; assist in the maintenance, administration, and development of personnel policies and the Employee Handbook....

COMMUNITY ADVOCATE
Location: Ventura
Program Name: TRI-GLAD
Salary Range: Negotiable based on experience
Brief Summary: Under the supervision of the Regional Director, the Community Advocate will assist deaf and hard of hearing consumers in the area of communication access via TTY relay, document translation, and other duties, provide advocacy in the areas of social security, education, employment, consumer affairs, and others, record statistics on a daily basis related to provision of services, counsel deaf and hard of hearing consumers with problems related to personal and family adjustments, finances, employment, food, clothing and housing....

REGIONAL DIRECTOR
Location: Ventura
Program Name: TRI-GLAD
Salary Range: Negotiable based on experience
Brief Summary: Under the direction of the Chief Executive Officer, the Regional Director will: plan and supervise the day-to-day activities of the Tri-County GLAD office in Ventura; provide direct counseling, personal advocacy and other assistance to clients of all ages; develop and implement education, advocacy and resource development efforts in the service area; ensure programmatic objectives are carried out by monitoring program progress and contract compliance; provide ongoing consultation, support and training to staff and supervise staff....

DIRECTOR of PUBLIC RELATIONS
Location: Los Angeles
Program Name: GLAD
Salary Range: Negotiable based on experience
Brief Summary: Under the direction of the Chief Executive Officer, the Public Relations Director will actively pursue and conduct research on current and potential projects, event sponsorship, underwriting, avenues for fundraising and donations; develop and nurture a network of contacts with public and government leaders, press, identify appropriate target media and conduct follow-up activities; assist with planning and implementing foundation, and giving events, visits, and meetings; identify and pursue editorial opportunities, speaking opportunities and trade show events; oversee development, editing and approval of materials....

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Employment Opportunity 2
Rehabilitation Specialist
Arundel Lodge, Inc.
Annapolis, MD
~~~~~~~~~~~~~~~~~~~

Searching for one person to work Full Time 3:00 p.m. to 11:00 p.m. w/ Deaf, mentally ill adults by applying crisis intervention, providing daily living skills support in a residential program setting in the Annapolis, MD area.

Ideal candidates will possess a BA/BS in Human Services/related field. Experience a plus. Valid driver's license (for the state that you reside in), and high school diploma/equivalency are required. Must be fluent in ASL.

Interested candidates can fax, e-mail, or mail resumes to:

Arundel Lodge, Inc.
ATTN: H.R. dept.
2012 Renard Ct., Suite I
Annapolis, MD 21401
Fax: (410) 841-6045
E-mail: lneate@arundellodge.org

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- Contact Information and Disclaimers
~~~~~~~~~~~~~~~~~~~

We are very interested in your comments concerning the content and format of this newsletter. We want this publication to be useful to you. Please send your comments and suggestions to: hearinglossweb@hearinglossweb.com

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