Volume 24 Issue 6

HOH-LD-News
Vol. 24, Issue 6
August 6, 2005

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Table of Contents
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- Article 1: OHL Questionnaire Results and Conclusions - Part 1

- Article 2: Captioning Hollywood: Methods, Might, Cinema and Civil Rights - Part 1

- Article 3: 123 Reasons (For Not Wearing Hearing Aids) - Part 2

- Article 4: Call for 'Designer' Hearing Aids

Our advertisers make it possible for us to provide HOH-LD-News as a free service. Please let them know you appreciate their support, and please mention that you saw their message in HOH-LD-News.

- Advertisers in this Issue
First Premium Placement: Only a Few More Days to Save on Pagers!
Second Premium Placement: The Bionic Ear Experience
Third Premium Placement: SUBMISSIONS WANTED FOR GROUNDBREAKING NEW BOOK
Classified Section: One Survey and four Employment Opportunities

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Contact information and disclaimers are at the end of this newsletter.
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- Article 1: OHL Questionnaire Results and Conclusions - Part 1
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We've finally started tabulating and analyzing the responses to our first OHL questionnaire (whew!), and have enough for our first article. We'll be presenting the rest of the results over the next few weeks.

We undertook this project because we sensed a growing dissatisfaction among the **Oral Hearing Loss** (OHL) population with the lack of services appropriate to them, and we wanted to get a sense of what services people want and how they should be provided.

(**We use the term "Oral Hearing Loss" to include people with hearing loss who prefer spoken language as their primary means of communications. This includes people who are hard of hearing, late-deafened, and oral deaf.**)

We received 42 responses to our questionnaire, which far exceeded our expectations! The fact that so many people took the time to complete the questionnaire, and to append so many insightful comments, indicates to us that our instincts were correct, that people are dissatisfied with the status quo and are willing to participate in efforts to change it.

We don't claim that this is a scientific survey, nor do we claim that the responses are indicative of the general OHL population. In fact, we know that the respondents are the "elite" of the OHL community and are anything but representative. Of the roughly 30 million OHL folks in the US, perhaps 20,000 are involved in one of the hearing loss organizations. This represents a participation rate of less than one-tenth of one percent. As you might expect, virtually all of the responses came from this small group.

We also didn't collect information on age, gender, hearing loss severity, age of hearing loss onset, education, employment status, family hearing loss history, or a hundred other variables that would allow us to characterize those who chose to respond.

Now the hard part begins - trying to extract meaning from a bunch of data! And we're hoping you will help. We'll provide some analysis and comments following each question or group of questions (where appropriate), but our intention is to provide objective analysis and reasonably obvious conclusions. We're hoping that YOU will spend some time thinking about these results and share your conclusions. What's behind some of the answers? What surprises you? What conclusions can you draw from this information? As always, we're anxious to hear what YOU think about this!

So with that, let's look at questions and responses

Question 1. What three services are most important to the Oral Hearing Loss (OHL) community? This can include services that are currently available, as well as services that you think should be provided, but are not currently available.

We grouped responses into three main categories: Support, Education, and Advocacy.

1a. Support

The largest number of respondents (38) mentioned various support services as being most important, and 36 of them included one or more service that enhances communications access.
- 21 people identified CART
- 12 people mentioned media (TV, movies, theater, web) captioning
- 8 people stated a need for the telecommunications relay service, with four of them specifically mentioning CapTel
- 7 people mentioned assistive listening devices (ALDs)
- 5 people identified state telephone distribution programs
- Other communications options included loop systems, oral interpreters, and user-independent voice recognition systems

A number of support services that do not directly enhance communications access were also identified.
- 8 people mentioned vocational rehabilitation or job services
- 4 people identified a need for psychological counseling specifically for hearing loss issues
- 3 people stated a need for classes on coping with hearing loss
- 2 people mentioned auditory rehabilitation

1b. Education

Education services was the number two category, with 12 respondents identifying needs in this area. Most of the needed education services were intended to educate OHL people.
- 5 people identified the need for lipreading (speechreading) classes
- 4 people want information on various technologies, including ALDs and phones
- Others mentioned classes on how to purchase a hearing aid, how to deal with HOH relatives, and sign language

The second category of education services is for people outside the OHL community.
- 4 people discussed the need to educate the general public, commercial interests, or government
- 2 people mentioned the need to teach audiologists that serving OHL people is about more than just hearing aids.

1c. Advocacy

Eight people mentioned advocacy in general or specific advocacy topics as important services.
- 4 people mentioned health insurance coverage/financial support for hearing aids, CIs, and/or auditory rehabilitation
- Other subjects included assuring that technology remains accessible and controlling background noise in malls, airports, etc.

Four people just couldn't wait for the next two questions, and included comments on characteristics of agencies serving OHL folks in this question. Two people identified a need for agencies that provide comprehensive OHL services, i.e., one-stop shopping. One person stated that existing agencies need to focus on the needs of OHL folks, and one maintained that agencies "of, by, and for" OHL folks are the only way to ensure appropriate services.

Analysis and Comments

The clear message here is that communications access is perceived as the overwhelming need of the OHL community, with widely available CART services as the number one priority.

Another message is that no single service or group of services represents a clear second priority! Once we get past communications access, we find a number of diverse services vying for second place. These include job services, lipreading classes, and psychological counseling. This need diversity may be what led a couple of people to identify the need for "one-stop" shopping. Here's how one respondent put it:

"AN EXAMPLE OF MY HOPES FOR THE FUTURE: When I was diagnosed with breast cancer at the UCLA Breast Center nine years ago, I was immediately pointed to the Rhonda Fleming Mann Resource Center for Women with Cancer in the same building. They offered free counseling and various support groups, and also had an entire library of materials for me to use and do research, there was also a store that sold items women with cancer might need (wigs, special bras, whatever). I was also assigned a nurse practitioner who could answer my questions over the phone. She also helped with insurance questions. Under bad circumstances they did everything possible to make life as easy as possible. This is what I wish we had available."

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- Article 2: Captioning Hollywood: Methods, Might, Cinema and Civil Rights - Part 1
By Cheryl Heppner
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Editor: Have you noticed more captioned movies in your area recently? It's not happening everywhere, but people in many communities have much better movie access than they had a couple of years ago. Some of the folks who were involved in making that happen were on a Movie Captioning panel at the SHHH convention. In the following article Cheryl Heppner captures their reports of how it all happened and what you can do to make it happen in your area.

If you'd like to share this article, please be sure to credit NVRC. (See credit at the end of the article.)

This is part one of three parts.

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Panel Members:
Mary Watkins, Media Access Group, WGBH
Cheryl Heppner, Coalition for Movie Captioning
Joe Gordon, SHHH State Coordinator, NY
Tom Simeone, Trial Attorney
Arlene Romoff, SHHH New Jersey

Mary Watkins, Media Access Group Outreach

Captioned movies started with open captions in the late 1970s through Tripod Captioned Films, which has now become an independent organization called InSight Cinema. For open captioned films, prints (copies) of the movie travel from city to city.

WGBH developed the Rear Window Captioning (RWC) system and began showing movies with it in the early 1990s. WGBH had been the pioneer in TV captioning in the 1970s. WGBH began to develop RWC, a closed captioning system, because open captioned movies were not being shown at the most popular times.

WGBH focus groups tested various kinds of closed captioning equipment and favored RWC. They began with 12 installations and now have 220. WGBH doesn't sell the equipment. They are a captioning and description agency. Theater chains that have installed RWC equipment include AMC, Loews, Consolidated, Clearview, Mann, and National Amusements.

WGBH movie captions are also used by Digital Theater Systems for their Cinema Subtitling System, an open captioning technology. Only selected screenings are accessible with this technology. Another system, Dolby ScreenTalk, is similar.

In the future there will be digital movies. Georgia Tech has developed a PDA-based captioning receiver which allows captions to float in front of your eyes.

Cheryl Heppner, Coalition for Movie Captioning

CMC was established in late 1999 and released its vision statement and position paper in January 2001. The goal is to make all first-run movies accessible. Individuals who are deaf and hard of hearing should have the same freedom to attend showings of any movie at any time, be seated anywhere in the theater, have access to all the audible portions of the movie through high quality, reliable captioning.

CMC stands ready to help the movie industry through input, referrals, market research, cost/benefit analysis, standards setting, testing, outreach, training of theater personnel. As an example, CMC learned recently that theaters in the US could not display DTS-CSS captions for two weeks after the release of 20th Century Fox movies, including blockbuster Star Wars Episode III. Movie theaters showing RWC were not restricted. CMC advocacy efforts resulted in 20th Century Fox deciding that movie theaters can display DTS-CSS at any time, starting with the day of release.

There are more than 36,000 movie screens in the US, but the number showing captioned movies on any day still number only in the hundreds. Much more progress needs to be made.

CMC encourages and is a resource for individuals and organizations to educate, advocate and litigate for increased movie access. It supports all forms of captioning: InSight Cinema open captioned movies, seat-based RWC, and screen-based open caption projection systems like DTS-CSS and Dolby ScreenTalk.

Each of the systems plays an important role in making movies accessible. Consumers and the movie industry may see pros and cons for each of these systems. The diversity fosters the captioning technology and quality. Having these systems in theaters gives all consumers and the movie industry the chance to experience, enjoy, learn more, and become better informed about movie captioning.

Joe Gordon, SHHH State Coordinator

It is important to have clarity in the words heard in theaters. New York City has many theaters. He couldn't appreciate movies with only an assistive listening device. Captioning made a tremendous difference in his comprehension and enjoyment.

We need to be clear what we want in captioned movies -- the ability to see them with family and friends, not limited to one technology, and available at the time of release.

Legislation is passed in proportion to calls, e-mails, letters and other communication received. Everyone should have input. It's best to write as an individual, not a form letter. Encourage your friends and family also; they can talk about how they want to be able to see movies with you. Organizations can also send letters.

You should send your letters to the theater, the owner of the chain, and the state Attorney General. Tell them you are being discriminated against. New York has no state agency for deaf and hard of hearing persons, so individual participation is even more necessary.

Be informed about the different ways to caption movies so you will be able to speak knowledgeably.

New York's SHHH conference had a visit by three assistant Attorney Generals because they had received many complaints. They had a very frank Roundtable discussion which included assistive listening devices, captioning, and signage in theaters.

***************
(c)2005 by Northern Virginia Resource Center for Deaf and Hard of Hearing Persons (NVRC), www.nvrc.org. When sharing this information, please ensure credit is given to NVRC.

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- Article 3: 123 Reasons (For Not Wearing Hearing Aids) - Part 2
By Richard Wagner
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Editor: I'm sure you all know someone who could wear hearing aids and would benefit from them, but just chooses not to. What reason do they offer for not doing something that would help them communicate? I'm sure some of us have heard some really creative excuses. I know Richard Wagner <rewagner@airmail.net> has, because he's actually compiled a list!

Richard is a freelance pastoral counselor and psychotherapist who has been hard of hearing since age four and deaf since about 1980. He has been very active in the Dallas area chapter of Self Help for Hard of Hearing People.

This article originally appeared in the Summer 2002 issue of Hearing Health Magazine. It is reprinted here with Richard's permission. This is part two of three parts.

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Teenagers

1. I don't want to be different and stand out from everyone else.
2. Why bother? I understand just fine without them.
3. Why not just wear a sign, "Defective Nerd/Loser here"!?
4. I would rather be listening to a Walkman!
5. I refuse. Hearing aids are not cool.
6. It's rude and obnoxious to make those noises in public (feedback).
7. I like ignoring people.
8. There's nothing I want to hear at school anyway.
9. Can't I just use them for school?
10. Could I have the money for something important like for a car?
11. How can I get a date with those things hanging out of my ears?
12. How about learning sign language instead?
13. I can't wear them when I'm playing sports.
14. They don't go with anything. I don't like the colors. They're ugly!
15. Electronics on my head, ugh!
16. They get in the way when I'm close to my boyfriend/girlfriend.
17. They scream at the worst times.
18. Everyone will know I have a hearing loss/something wrong with me.
19. Why do I have to hear all the time?

Adults

1. Why bother, nothing makes sense anyway. It's all noise to me.
2. Why? So I can hear you yap at me all the time?
3. It's too expensive to buy them and keep them running.
4. People will think less of me and respect me less.
5. I don't need to hear what you're saying; I already know.
6. I want to save money by not using so many batteries.
7. If I use them less, they will last longer.
8. I like my solitude. I want to have some undistracted time to myself.
9. It makes things too loud and distracts me from my work.
10. I'm worried they will interfere with my brain waves.
11 I only need them when I'm on the phone or at work.
12. No one is talking to me right now anyway.
13. It's not safe to wear them around my job.
14. Hearing aids are only for old folks and deaf people.

Moms/Wives

1. I will put them on when I have time.
2. I'm busy now, don't bother me.
3 It's the only way I can get any peace and quiet around here.
4. Shhhh. Mommy's busy now.
5. I'm too tired to try to hear.
6. I have a headache./Hearing aids give me a headache.
7. Why do you demand that I listen to you all the time?
8. I haven't gotten ready for the day yet.
9. It's not safe to wear them around the house.
10. The kids can hear me better when I don't wear my aids because I talk louder.
11. I have more to do now than I can handle. I can't be bothered now.
12. The kids are making too much noise and I don't want to hear it.
13. My kids take enough of my time; aids would just give them more excuses to get my attention.

Fathers/Husbands

1. Don't I get any time to myself around here?
2. Why? So you can tell me what to do?
3. The game is not on now so why do I need them?
4. (Alternately) I don't need my aids to understand this game, this program, etc.
5. Do I look like someone from outer space? Who needs that gear?
6. I don't have any hearing problem; you just need to speak up.
7. I'm planning to work on my .
8. Only wimps wear hearing aids.
9. They're for old folks, like Gramps.
10. It's too much bother.
11. I'm too tired!
12. Why are you always bugging me about my wearing my aids?

In the Workplace

1. I don't want people to think I'm broken or dysfunctional or can't do my job.
2. People won't respect me with those things hanging off my head.
3. It's just too much trouble to wear them at work.
4. I'm scared I might break them.
5. I do just fine with my assistive devices.
6. My boss/coworker/shop foreman doesn't speak well/loudly/clearly enough.
7. No one here speaks my language/really needs to talk to me anyway.
8. I can't hear well with them.
9. I'm afraid people will treat me as if I'm not smart.
10. It's too noisy in here anyway. Why add to my stress with distractions?
11. Why bother? I know how to do my job already.

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- Article 4: Call for 'Designer' Hearing Aids
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"It's so small that no one will know you're wearing it." How often do we hear comments like that, especially from the people who are trying to sell us the devices they're talking about!

We have often lamented the fact that most of American society promotes the notion that hearing aids are something to be ashamed of. And we applaud those who proudly display their BTEs for the world to see. I believe that a lot more people would take advantage of hearing aids if they didn't have such a stigma.

The folks at Britain's Royal National Institute for Deaf People (RNID) feel the same way, and they're promoting the idea that stylish hearing aids could become as fashionable as glasses! For the full story please point your browser to: http://news.bbc.co.uk/2/hi/technology/4706923.stm

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- Classifieds
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One Survey and four Employment Opportunities appear in this issue. (Ads appear after this brief table of contents.)

Survey on Assistive Listening Devices for Adult (18 and Up) Hearing Aid and Cochlear Implant Users
Gallaudet University RERC on Hearing Enhancement
https://securedgspp.gallaudet.edu/ald/

Employment Opportunity 1
Early Childhood Educator
CID Oral School & Outreach Center
Silver Spring, MD

Employment Opportunity 2
Various Employment Openings
Greater Los Angeles Agency on Deafness, Inc.
Various Southern California Locations

Employment Opportunity 3
Assistant Director
Maryland Office of the Deaf and Hard of Hearing
Baltimore, MD

Employment Opportunity 4
Member Services & Information Technology Officer
TDI
Silver Spring, MD

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Survey on Assistive Listening Devices for Adult (18 and Up) Hearing Aid and Cochlear Implant Users
Gallaudet University RERC on Hearing Enhancement
https://securedgspp.gallaudet.edu/ald/
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On-line survey on Assistive Listening Devices for Hearing Aid and Cochlear Implant Users (ages 18 and up)

Give us an earful! The Rehabilitation Engineering Research Center (RERC) on Hearing Enhancement at Gallaudet University is interested in your experiences with and opinions of assistive listening devices. Assistive listening devices work with your hearing aid or cochlear implant to make it easier for you to understand speech in meetings, at church, at the movies, in classes, and in many other situations.

Are they working for you? What suggestions do you have? The results of this confidential survey will be shared with professionals, companies, and other consumers. Go to https://securedgspp.gallaudet.edu/ald/ to complete the survey. If you have any questions, you may contact the research staff at survey@tap.gallaudet.edu.

This study has been approved by the Gallaudet University Institutional Review Board.

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Employment Opportunity 1
Early Childhood Educator
CID Oral School & Outreach Center
Silver Spring, MD
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CID Oral School & Outreach Center seeks an Early Childhood Educator for a teaching position in the preschool department for the 2005-2006 school year. CID is an auditory oral school where hearing-impaired children learn to listen and talk. Candidates should be motivated, organized and flexible, have experience teaching young children, and be willing to work closely with a team of teachers of the hearing impaired. Bachelor's degree and teaching certification in Early Childhood Education is required; Master's degree is preferred. Additional certification in special education is desirable.

We offer a competitive salary commensurate with experience along with excellent insurance benefits, retirement, and a tax-sheltered savings plan. Qualified applicants may send resume, cover letter and salary history to:

Teacher
c/o Human Resources
Central Institute for the Deaf
4560 Clayton Ave.
St. Louis, MO 63110

or e-mail to: atighe@cid.wustl.edu

EOE/M/F/D/V

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Employment Opportunity 2
Various Employment Openings
Greater Los Angeles Agency on Deafness, Inc.
Various Southern California Locations
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- Job Developer/Interpreter - Crenshaw
- Community Advocate - Los Angeles, Ventura
- Executive Assistant to the CEO- Los Angeles
- Human Resources Specialist - Los Angeles
- Community Interpreter - Los Angeles
- LIFESIGNS Director - Los Angeles
- Job Developer/Interpreter - Norwalk
- Job Developer/Interpreter - West Covina, Rancho Cucamonga

please go to:
http://www.gladinc.org/jobs.htm

GLAD is an AA/EOE

Thank you for considering GLAD as a potential employer.

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Employment Opportunity 3
Assistant Director
Maryland Office of the Deaf and Hard of Hearing
Baltimore, MD
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Assistant Director, Office of the Deaf and Hard of Hearing (#ODHH-05-01)
Salary: Grade 16 (Range $38,578 - $59,475)
Closing Date: August 12, 2005
Maryland offers a competitive salary and a very generous leave and health benefits package.

The successful candidate will oversee the daily administrative functions of the Office of the Deaf and Hard of Hearing (ODHH), to include providing delivery of the following services: Awareness/Sensitivity Training and Technical Assistance, Constituent Services and Community Outreach and Education. Responsibilities include representing the ODHH in various settings.

Bachelor's Degree (Masters Degree, desirable) from an accredited four-year college and five years of professional experience in a behavioral or social science field, including three years of managerial experience that involves program development. Training and/or experience in working with deaf and hard of hearing persons. The ability to communicate with individuals who are deaf, deaf-blind, hard of hearing, hearing and late deafened is required. A Master's Degree in a Behavioral or Social Science related field may be substituted for two years of the required experience.

A complete list of responsibilities and minimum qualification requirements can be found at our website www.dbm.maryland.gov. Call 410-767-4720 or email msmith@dbm.state.md.us with any questions.

To Apply: Resumes will be evaluated based on the materials submitted in relation to the position requirements. Therefore, it is important to provide complete and accurate information to describe your prior training and experience. Please include a cover letter with the job # and salary requirements to: Steve Serra, Director, Recruitment and Examination Division, 301 West Preston Street, Baltimore, MD 21201. Application materials may be submitted via email at dbmresume@dbm.state.md.us. This is a Special Appointment position. Resume materials must be received by 5 PM EST on August 12, 2005. EOE

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Employment Opportunity 4
Member Services & Information Technology Officer
TDI
Silver Spring, MD
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General Description: Member Services & Information Technology Officer is responsible for member services, webmaster/layout design activities, and information technology for TDI's publications, websites, and related programs/services.

Salary: Negotiable, commensurate with experience & education
Organization: TDI
Type of Appointment: Full-time
Location: Silver Spring, MD
Posting Date: 7/29/2005
Closing Date: 8/12/2005

Duties & Responsibilities:
* Maintain membership database on a regular basis. Resolve member/subscriber service issues.
* Conduct layout/graphic design services for the Blue Book, the GA-SK Newsmagazine, TDI's website, biennial TDI Conference, and any other TDI operations including but not limited to: brochures, membership and subscription application/renewal forms, promotional cards, program books, power point presentations, and video clip productions.
* Assess information technology needs of TDI's operations, develop plans, and implement action to accomplish these needs.
* Represent TDI at various events hosted by consumer, industry and/or government groups.
* Perform other duties as assigned by the Executive Director.

Knowledge, Skills and Abilities

* Required - Substantial knowledge of techniques, tools, and other resources in database management, online SQL experience preferred.
* Required - Ability to create and layout written material for websites, publications, information and referral program, and outreach/training activities.
* Required - Ability to produce video clips and other interactive features for TDI's in-house and remote websites.
* Required - Substantial knowledge of techniques, tools, and other resources in database management, and information technology.
* Required - Excellent personal interaction skills with diverse individuals who are deaf, hard of hearing, late-deafened, deaf-blind or hearing.
* Required - Excellent writing and research skills.
* Required - Excellent computer skills including familiarity with Word, Excel, Publisher, Power Point, and Access. Experience with Web design and/or database management software preferred.
* Required - Self-starting ability, and planning and organizing skills in nonprofit management environment.
* Required - Experience with user interface web design and architecture.
* Required - Knowledge and application of web accessibility features required by Section 508 and by W3C/WAI.
* Required - Skills in HTML, SQL, and JavaScript development.
* Required - Familiarity with SQL and other database programming languages.
* Preferred - ASP.NET or PHP programming experience.
* Preferred - Familiarity with the latest Internet technologies (Flash, multimedia video).
* Preferred - Knowledge of accessibility regulations, policies and procedures in telecommunications, media, and information technology for individuals who are deaf, hard of hearing, late-deafened, or deaf-blind and their families.
* Preferred - General knowledge of resources in hearing loss at local, state, and national levels in relation to telecommunications, media, and information technology

Training and Experience Requirements:

Preferably a Master's degree in communications, computer science, engineering, mathematics, information technology, or related curriculum and one year of experience; or a bachelor's degree in one of the above fields and three years of experience. Experience in database administration, technical writing, and design documentation.

How to Apply:
All applicants must submit a letter of interest and a resume to TDI. Applications must be received at the TDI office by 5:00 p.m. on or before the closing date. Email submissions are welcome. No phone calls please.

TDI selects applicants for employment based on job-related knowledge, skills, and abilities without regard to race, color, gender, national origin, religion, age, disability, sexual orientation, or political affiliation.

Contact Person: Claude L. Stout, Executive Director
Contact Agency: TDI
Contact Address:
8630 Fenton Street, Suite 604, Silver Spring, Maryland 20910-3803
Contact Numbers:
TTY: (301) 589-3006; Voice: (301) 589-3786; Fax: (301) 589-3797
WWW & Email: www.tdi-online.org tdiexdir@aol.com

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- Contact Information and Disclaimers
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