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Implanting Prelingually Deaf People

Does it make sense to implant people who have never heard, or at least never understood, spoken language? Is there any hope that they can learn to understand spoken language? What are realistic expectations for someone who has never understood spoken language? Read on!

We normally think of cochlear implants as being particularly effective with postlingually deaf people. Read the thoughts of a Prelingually Deaf Recipient concerning the performance of his cochlear implant.

June 2001 - Speaking of CIs and prelingually deaf adults, a New York University School of Medicine study recently evaluated the success of CIs in prelingually deaf adults. The results may surprise you!

December 2005 - Family wins CI insurance victory

December 2007 - Cochlear Implant Outcomes and Quality of Life in Adults with Prelingual Deafness

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Prelingual Recipient

We are all familiar with the success stories of post-lingually deaf people who get cochlear implants. But we don't hear much about the perceptions of pre-lingual deaf people who have implants. Here are some thoughts from one pre-lingually deaf man who was recently implanted.

"All I can say is that a CI is nothing like a hearing aid, not even that close. On my hookup, perceptually, it's entirely a new sense to me - had no idea what I was "sensing." It didn't feel like hearing at all like I did with my hearing aids. I realized that it would be very difficult for prelingually deaf adults to adjust. It took me awhile to realize that the sensations I had were actually sounds.

"A good example of how much different a CI is compared to my HA:

"I have a profound deafness. I can hear low deep sounds very well but cannot hear high frequency sounds very well. With my HA, low-pitched sounds sound LOUDER than high pitched sounds. I would play the keys on the left side of piano because I can hear them well. 

"With my CI, it's completely reversed!!! Perceptually, low-pitched sounds are a lot less loud while high-pitched sounds are a lot louder. I was upset because I've always loved hearing low-pitched sounds and I wasn't sure if it's normal to have that kind of "reversed frequency" hearing. When I asked my hearing friends, they all say that low-pitched sounds are perceptually less loud than high pitched sounds on a same volume! That I didn't know! 

"There are three major perception changes that are common in prelingually deaf adults who got implanted: 

"1. The acoustic "reversed frequency" perception may be difficult for deaf people who feel totally comfortable with hearing aids that produce amplified low-pitched sounds. With CI, they have to learn to get used to rustling of papers and clothes, breathing, sighs, squeaky sounds, etc. 

"2. CI doesn't amplify sounds at all so to many prelingually deaf adults, they often experience "non-auditory percept" meaning that they feel something in their heads and they don't feel like they're "hearing" like they do with their HAs. Most postlingually deaf adults who got implanted reported that CI is more like normal hearing than their HAs. 

"3. CI sounds are several times sharper and crisper than hearing aid sounds so they're not used to hearing ultra crisp sounds. Some felt like they were "shocked" because the sounds are too 'sharp'." 

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Do Congenitally Deaf People Benefit from Cochlear Implants?

June 2001

It's becoming pretty well accepted within the hearing loss community that cochlear implants (CIs) can greatly improve the quality of life for people who are post-lingually deaf, i.e. who became deaf after acquiring language. The studies further indicate that people who have been deaf a shorter period of time and those who continue to process auditory input (e.g., using a hearing aid) generally tend to receive benefit faster than those who don't.

But what about people who are congenitally deaf, i.e., who were born deaf and have never heard or expressed spoken language. What is their experience with CIs?

The medical industry has generally been reluctant to implant congenitally deaf people, because early trials were not very successful. While congenitally deaf people quickly perceive and respond to sound, they were generally unable to understand spoken language. This is hardly surprising, never having heard it before! But these results and other factors led the medical industry to adopt much stricter criteria for implanting congenitally deaf people, compared to those who are post-lingually deaf.

A recent study entitled "Delayed Implantation of Congenitally Deaf Children and Adults" indicates that the criteria for implanting congenitally deaf people should be reexamined. The study was conducted by Susan B. Waltzman, PhD, J. Thomas Roland, Jr., MD, and Noel Cohen, MD, all from the Department of Otolaryngology at the New York University School of Medicine. They presented their results at the May 13 meeting of the American Neurotology Society.

The study focused on congenitally deaf adults and children implanted after the age of eight. Standard audiological tests were conducted prior to and after implantation. The majority of adults showed improvement in monosyllabic word identification, open set sentence recognition, and hearing in the presence of noise. All used their CIs on a regular basis, and all believed that their CIs enhanced their communication skills. The children also demonstrated significant improvement on a variety of audiological tests, and the younger the child at implantation, the greater the improvement.

Based upon these results, the researchers suggest the following conclusions:

1. Congenitally, long-termed profoundly hearing impaired children and adults can obtain substantial open set speech recognition after implantation using the currently available speech processing strategies.

2. There is a correlation between the age at implantation (and age of deafness) and the length of time the device was used with post-implant improvement.

3. A consistent increase in mean test scores demonstrates continued improvement in speech perceptual skills, but there is no evidence to assert that pre-implant performance predicts benefit from cochlear implantation.

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Family wins CI insurance victory

December 2005

From the "ASHA Leader" - "Growing up deaf, it took years for 16-year-old Mila O'Bryant to make a decision to get a cochlear implant, and she was ecstatic to be considered a candidate. But in an era when insurance reimbursement for cochlear implantation is routine, a stunning insurance denial threatened to silence her dreams. In a routine call to her primary care physician, Mila O'Bryant's mother Kathy O'Bryant requested a series of referrals required by their managed health care plan to complete the cochlear implant candidacy process beyond the initial consultation and audiological testing at Oregon Health & Science University (OHSU). But instead of a referral, Mila O'Bryant was denied a cochlear implant because she is prelingually deaf."   Full Story

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Cochlear Implant Outcomes and Quality of Life in Adults with Prelingual Deafness.

December 2007

Objectives: To evaluate sound and speech perception and quality of life in prelingually deafened adults implanted with state of the art devices. To investigate which patient factors influence postoperative performance.

Study Design: Prospective intervention study.

Methods: Eight prelingually deafened subjects (with onset of severe hearing impairment before the age of 4 years and functioning in an oral-aural setting) participated in this study. Subjects were implanted at a mean age of 36 (range, 21-55) years with a CII or 90 K cochlear implant (Advanced Bionics Corp.). All subjects completed standard speech perception tests as well as quality of life measures (Health Utility Index Mark-II, Nijmegen Cochlear Implant Questionnaire, visual analogue scale for subject's hearing and health) at different points in time. Postoperative scores were compared with each other and with the baseline preoperative scores. The relationship between nine patient variables and the postoperative consonant-vowel-consonant (CVC) phoneme score was also investigated.

Results: Significant improvement was measured for CVC word and phoneme scores and several quality of life measures. Postoperative speech perception correlated with a new and promising factor named quality of a patient's own speech production (QoSP).

Conclusion: With state of the art implants, speech perception and quality of life do improve in prelingually deafened adults. More importantly, the prognostic value of QoSP should be investigated further.  Full Story